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Useful Contacts

Ryde Health Clinic

615555

St Mary's Hospital

524081

Patient Liaison Office - St Mary's Hospital

534420/534850

Isle of Wight Police

0845 045 45 45

Police Confidential Helpline
(To report non-emergency crime 24 hours)

101

Social Services

566011

Samaritans

01722 323355

Alcoholics Anonymous

0845 769 7555

Relate (Marriage Guidance)

524402

IRIS
(For help and advice on problems relating to drugs and alcohol)

526654

Isle of Wight Youth Trust
(Confidential counselling for young people)

529569

Citizens Advice Bureau

08444 111 444

Wightcare
(Life-line telephone scheme offering 24-hour emergency cover to elderly and disabled people)

821105

Dental Treatment Helpline

111

Isle of Wight Primary Care Trust

524081

Support Empower Advocate Promote (SEAP)

0330 440 9000

Long Term Condition Support Groups

Amputees

IOW Amputee Group
Health conditions covered - Congenital or acquired limb loss, all persons on the IOW

Contact
Sue Moody
 07786653808
iowampsug@googlemail.com
 http://iowampgroup.org.uk/

Arthritis - Inflammatory

Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group

Health conditions covered - Inflammatory Arthritis: Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis

Contact
Hayley Bartlett
07708469764
hayley@iwrias.org.uk
http://www.iwrias.org.uk/
Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group have a page and group set up on Facebook.

Asthma

Isle of Wight Asthma Swimgroup

Health conditions covered - asthma

The Isle of Wight Asthma Swimgroup was formed in 1984 by the Isle of Wight Branch of what is now Asthma UK to encourage people with asthma to enjoy exercise. Swimming is known to be the least provocative exercise for asthmatics.

Contact
Liz Bell
01983 564356
CANCER

John Cheverton Information and Support Centre, Earl Mounbatten Hospice
The centre is open to anyone and everyone affected in anyway by any potentially life limiting illness (this includes relatives, friends, carers and health care professionals). It is open Monday – Friday 10am-4pm on a drop in basis and has been designed to offer contact, support, information, direction and help. Someone will always be available to listen to you and discuss your needs. We warmly welcome everyone to the centre or alternatively please telephone
01983 535319
email: infosupport@iwhospice.org

Living Well On Wight

Cancer changes everything….. A Living Well Course can help you to gain a sense of control and make positive changes by finding your own way to live well with the impact of cancer. It has been designed to work alongside your medical treatment, providing you with support at any stage of your cancer journey; before, during and after treatment. It is offered free and is available to anyone and their close supporter whose life has been impacted by cancer.

Contact
Helpline 0845 123 2310
Penny Brohn Cancer Care: 01275 370 100
Email: info@pennybrohn.org

Bowel cancer – Semi Colon Group, supported by Macmillan Cancer Care

Health conditions covered – Bowel cancer support, including carers
Contact
Mr A C Crowson
 01983 528642
cjtinson@gmail.com
www.semicoloniow.org

Applegate Breast Care Support Group

Health conditions covered – Breast Cancer

Contact
Mary Seymour
 07814699470 or Breast Care Nurses 534562
mary_tutuila@uwclub.net

Head and neck cancer support group

Health conditions covered – All head and neck related cancer patients and their carers, family and friends

Contact
Mrs June Ring
Mrs Mary Seymour
 01983 524186
isleofwight@wessexcancer.org
www.wessexcancer.org

Lung cancer support group

Health conditions covered – Lung cancer patients, carers, family and friends
Contact
Mrs June Ring
Mrs Mary Seymour
 01983 524186
isleofwight@wessexcancer.org
www.wessexcancer.org

Prostate & other Urology Cancer Support Group, IW

Health conditions covered - Urological cancers but predominately prostate cancer

Contact
Dave Kiely
 01983 407662
davekielyiow@aol.com
www.isleofwighturologycancersupportgroup.org.uk

Radiotherapy Reunion Group

Health conditions covered – All patients, carers and friends of those who have received radiotherapy
Contact
Mrs June Ring
Mrs Mary Seymour
 01983 524186
isleofwight@wessexcancer.org
www.wessexcancer.org

Upper GI cancer Support Group

Health conditions covered – All those with upper gastrointestinal cancers, carers, friends and family
Contact
Mrs June Ring
Mrs Mary Seymour
 01983 524186
isleofwight@wessexcancer.org
www.wessexcancer.org

Skin cancer support group

Health conditions covered – All those with skin cancers, their carers, family and friends
Contact
Mrs June Ring
Mrs Mary Seymour
 01983 524186
isleofwight@wessexcancer.org
www.wessexcancer.org

Carers

Carers UK IW & Quay Carers

Health conditions covered - Unpaid Adult Carers of Adults

Contact
Elizabeth Martin/Soo Scott
01983 533173
carersiw@btconnect.com
http://carersukiwbranch.wordpress.com

Dementia

Alzheimer Café UK IOW Branch

Health conditions covered - Dementia – all types

Contact
Maggie Bennett
01983 220200
alzheimercafeiow@btconnect.com
www.alzheimercafeiow.org.uk
Facebook – AlzheimerCafeIOW
Twitter - @AzCafeIOW

Dementia Carer

www.dementiacarer.net

Diabetes

Diabetes UK Isle Of Wight Voluntary Group

Health conditions covered - Diabetes

Contact
Richard Newnham
01983 290168
ricnewnham@onwight.net
http://isle-of-wight.diabetesukgroup.org/home/iow---home.asp

Fibromyalgia

Isle of Wight Fibromyalgia Support Group

Health conditions covered
Fibromyalgia
Chronic Fatigue Syndrome
ME

Contact
Karen Smith
0844 887 2346
iwfmsg.fibromates@gmail.com 
www.isleofwightfibromyalgia.webs.com
Facebook Fibromates-Isle of Wight Fibromyalgia Support Group

Hearing Impairment

Action on Hearing Loss Sensory Service IOW

Health conditions covered
Action on Hearing Loss Sensory Service Isle of Wight provides support services to adults living with hearing loss or dual hearing and sight loss on the Isle of Wight on behalf of the Isle of Wight Council.

Diagnosed hearing loss (either privately or through the NHS).
Dual sensory loss (deafblind).

Contact
Ann Emery, Service Manager
01983 529533 , Textphone: 01983 529998
IOW@hearingloss.org.uk
www.actiononhearingloss.org.uk

Services include free home assessment and free equipment loan service based on the assessment of needs, mobility training, access to specialist advice and support for any one with a sensory loss, befriending and coffee mornings  and monthly drop in clinics across the Island for maintenance of NHS hearing aids.  

Heart Disease

Isle of Wight Heart Care Club

Health conditions covered - All heart conditions

Contact
Mrs Lyn Smith
01983 296091 
lynsmith250@hotmail.co.uk 
 www.islandheartcareclub.org.uk

Neurological Conditions

Epilepsy Society (Isle of Wight)

Health conditions covered - Epilepsy 

Contact
Dave Piggott
01983405825
davidpiggott@yahoo.co.uk

Headway Isle of Wight

Health conditions covered - Head injury. We support anyone who has suffered a brain injury, the families and carers.

Contact
Mrs Joy Cleightonhills 
01983 874651
joy.headwayiow@gmail.com
Facebook - Headway IOW

Huntington’s Disease Association

Health conditions covered - Huntington’s Disease

Contact
Eve Payler
02380 612218
eve.payler@hda.org.uk
www.hda.org.uk

Motor Neurone Disease Association, Isle of Wight branch

Health conditions covered
Motor Neurone Disease

Contact
Maureen Martinez / Ann Marchant
01983 615 701 or 07922 12 34 16
mam_nfm@yahoo.co.uk
www.mndiw.btck.co.uk

Muscular Dystrophy Campaign, Isle of Wight Branch

Health Conditions Covered
Becker muscular dystrophy
Bethlem myopathy
Central core disease
Charcot-Marie-Tooth disease (CMT)
Congenital muscular dystrophy (CMD)
Congenital myasthenic syndromes
Congenital myotonic dystrophy
Duchenne muscular dystrophy
Emery-Dreifuss muscular dystrophy
Facioscapulohumeral muscular dystrophy (FSH)
Fibre-type disproportion
Fibrodysplasia ossificans progressiva (FOP)
Inclusion body myositis (IBM)
Juvenile dermatomyositis
Limb girdle muscular dystrophies (LGMD)
Limb girdle muscular dystrophy 1B (LGMD 1B)
Limb girdle muscular dystrophy 1C (LGMD 1C)
Limb girdle muscular dystrophy 2A (LGMD 2A)
Limb girdle muscular dystrophy 2B (LGMD 2B)
Limb-girdle muscular dystrophy 2I (LGMD 2I)
Manifesting carriers of Duchenne muscular dystrophy
McArdle disease
Merosin-deficient congenital muscular dystrophy: MDC1A
Metabolic disorders
Minicore (multicore) myopathy
Mitochondrial myopathies
Myasthenia gravis
Myopathy
Myotonias
Myotonic dystrophy
Myotubular (centronuclear) myopathy
Nemaline myopathy
Oculopharyngeal muscular dystrophy (OPMD)
Periodic paralyses
Polymyositis, dermatomyositis and sarcoid myopathy
Rigid spine syndrome
Sarcoglycanopathies: LGMD2C, LGMD2D, LGMD2E and LGMD2F
Spinal muscular atrophy (SMA)
Ullrich congenital muscular dystrophy

Contact
Mr Colin M Baker
01983 242961
feathers455@hotmail.co.uk
http://www.muscular-dystrophy.org/
https://www.facebook.com/musculardystrophycampaign

Myasthenia Gravis Association (MGA) Isle of Wight branch

Health conditions covered
Myasthenia Gravis(MG)
Ocular Myasthenia
Congenital Myasthenia
Lambert Eaton Myasthenia Syndrome (LEMS)

Contact
Mrs Lynne Pitcher
01983 761265
piglettina@btopenworld.com
www.mga-charity.org

Parkinson’s UK, IOW Branch

Health conditions covered - Parkinson’s disease

Contact
Mr Ron Tweedie
884913
tweediern@onwight.net

Isle of Wight Association for Spina Bifida & Hydrocephalus

Health conditions covered
Spina Bifida
Hydrocephalus

Contact
Sylvia Griffiths
 01983 863658
adrian.axford@gmail.com
www.iwasbah.com
https://www.facebook.com/pages/Isle-of-Wight-Association-for-Spina-Bifida-and-Hydrocephalus/585664281508543

Respiratory Disease

Breathe Easy Isle of Wight / BLF Active Isle of Wight

Health conditions covered - support for anyone managing and living with a Chronic Lung Condition

Contact
Andy Savage
Andy Savage 01983 810932
Respiratory Dept. 01983 552190
ajsavage67@yahoo.co.uk
British Lung Foundation  www.lunguk.org
Facebook:  Breathe Easy IOW

Cystic fibrosis Trust – Portsmouth and Isle of Wight branch

Health conditions covered – Cystic fibrosis

Contact
Sue Krug, Secretary
Sue Krug 023 92469104
CFT Helpline 0300 373 1000
enquiries@cysticfibrosis.org.uk
zlkruk@waitrose.com
www.facebook.com/CFPortsmouth

STROKE

Isle of Wight stroke Club

Health conditions covered - stroke - CVA, TIA

Contact
Carole Greenham
Bob Stringer
01 983 869 100
enquiries@wightfightingstroke.org
www.wightfightingstroke.org
https://www.facebook.com/home.php#!/groups/i.o.w.strokeclub/

Stroke Support, Isle of Wight – The stroke Association

Health conditions covered - stroke – information, advice and support for stroke survivors and their close network to manage the impact of stroke

Contact
Mary Barton, Information, Advice and Support Co-ordinator
Maeve Fuller, Information, Advice and Support Co-ordinator
01983 898301
iow@stroke.org.uk
www.stroke.org

Communication Support, IW - The stroke Association

Health conditions covered - stroke –Support for those whose communication has been affected by stroke

Contact
Tina Cutting, Communication Support Co-ordinator
01983 612729
iow@stroke.org.uk
www.stroke.org

Visual Impairment

Isle of Wight Society for the Blind

Health conditions covered
Visual Impairment – all aspects.
Support to families and friends of people with a visual impairment

Contact
Estelle Thomas
01983 522205
enquiries@iwsb.org.uk
www.iwsb.org.uk

The website is currently being re written to take into account new services

Action on Hearing Loss Sensory Service IOW

Health conditions covered
Action on Hearing Loss Sensory Service Isle of Wight provides support services to adults living with slight loss or dual hearing and sight loss on the Isle of Wight on behalf of the Isle of Wight Council.

Diagnosed Sight loss (usually by a consultant ophthalmologist) Dual sensory loss (deafblind).

Contact
Ann Emery, Service Manager
01983 529533 , Textphone: 01983 529998
IOW@hearingloss.org.uk
www.actiononhearingloss.org.uk

Services include free home assessment and free equipment loan service based on the assessment of needs, mobility training, access to specialist advice and support for any one with a sensory loss, befriending and coffee mornings  and monthly drop in clinics across the Island for maintenance of NHS hearing aids. 

Clinical Commissioning Group (CCG)

Our local CCG is the Isle of Wight Clinical Commissioning Group which is located at:

Isle of Wight Clinical Commissioning Group
Building A
The Apex
St Cross Business Park
Newport
Isle of Wight PO30 5WN

Tel: 01983 552064

Your Neighbourhood Professionals Walter Gray & Co Solicitors Wight Sound Hearing
© Neighbourhood Direct Ltd 2017
19 The Esplanade, Ryde, Isle of Wight, PO33 2EH
Practice Website supplied by Oldroyd Publishing Group
Your Neighbourhood Professionals Walter Gray & Co Solicitors Wight Sound Hearing
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